392 pp., 6.125 x 9.25, 7 illus., notes, index
Studies in Social Medicine
Jesica Santillan, the Bungled Transplant, and Paradoxes of Medical Citizenship
In February 2003, an undocumented immigrant teen from Mexico lay dying in a prominent American hospital due to a stunning medical oversight--she had received a heart-lung transplantation of the wrong blood type. In the following weeks, Jesica Santillan's tragedy became a portal into the complexities of American medicine, prompting contentious debate about new patterns and old problems in immigration, the hidden epidemic of medical error, the lines separating transplant "haves" from "have-nots," the right to sue, and the challenges posed by "foreigners" crossing borders for medical care.
This volume draws together experts in history, sociology, medical ethics, communication and immigration studies, transplant surgery, anthropology, and health law to understand the dramatic events, the major players, and the core issues at stake. Contributors view the Santillan story as a morality tale: about the conflicting values underpinning American health care; about the politics of transplant medicine; about how a nation debates deservedness, justice, and second chances; and about the global dilemmas of medical tourism and citizenship.
Charles Bosk, University of Pennsylvania
Leo R. Chavez, University of California, Irvine
Richard Cook, University of Chicago
Thomas Diflo, New York University Medical Center
Jason Eberl, Indiana University-Purdue University Indianapolis
Jed Adam Gross, Yale University
Jacklyn Habib, American Association of Retired Persons
Tyler R. Harrison, Purdue University
Beatrix Hoffman, Northern Illinois University
Nancy M. P. King, University of North Carolina at Chapel Hill
Barron Lerner, Columbia University Mailman School of Public Health
Susan E. Lederer, Yale University
Julie Livingston, Rutgers University
Eric M. Meslin, Indiana University School of Medicine and Indiana University-Purdue University Indianapolis
Susan E. Morgan, Purdue University
Nancy Scheper-Hughes, University of California, Berkeley
Rosamond Rhodes, Mount Sinai School of Medicine and The Graduate Center, City University of New York
Carolyn Rouse, Princeton University
Karen Salmon, New England School of Law
Lesley Sharp, Barnard and Columbia University Mailman School of Public Health
Lisa Volk Chewning, Rutgers University
Keith Wailoo, Rutgers University
"Well worth reading. . . . Recommended."
"Provides inspiration and insight . . . for those grappling with the paradoxes of organ transplants in other settings."
"This valued text belongs on the reference shelves in the libraries of our colleges of medicine and nursing, as this text could serve as the primary reference for an entire semester ethics course."
--Journal of the National Medical Association
"This cautionary tale is well worth reading. Recommended."
“Experts in history, sociology, medical ethics, communication, immigrations studies, transplant surgery, anthropology, and health law . . . provide a broad overview of some of the most interesting issues facing organ transplantation today. . . . A very worthwhile read.”
--American Journal of Transplantation
“The linchpin for this remarkable set of essays is the death of an illegal immigrant due to a ‘botched’ transplant. Situating discussion of this particular medical error and responses to it in a broad context, contributors raise vexing questions about medical citizenship, human rights and justice, immigration policies, and the global activity of organ tourism and trafficking. Intransigent moral and social problems associated with transplant technology are laid bare for critical reflection.”
--Margaret Lock, author of Twice Dead: Organ Transplants and the Reinvention of Death
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